Sunday, December 28, 2008

Waiting for the new Year

We are in the process of waiting for the new year. Both boys are happy to be home from school and getting to play the Wii unless they have too much and then Mom and Dad have to cut them off for a while. I am thinking it is time to let them play until they get sick of it so they won't want to live on it in the future! Ha what kid wouldn't want to play on the Wii non stop.

I think both boys are bit under the weather. Or like me extrememly tired over the holidays. I mean there is so much fun and frolic you can do.

Soon we will be trying new meds with Brandon. I think what we currently have is not strong enough. I think we need to do more or up the dose some. I am looking forward to having the right combination, currently we are using what we had since we didn't want to try something new over the holidays and vacation. I will keep you posted.



Brandon has been calmer now that Santa has come and gone. But we still have our occasional outbursts that make you want to scream. For example, this morning we got ready for church, something we do weekly. Brandon has to get all tork up over it, the excitiability that I can undersand if he didn't have a clue about church but he does so I am lost by his reactions. I mean he is shouting at his brother, quickly angered by little things and not wanting to listen to me just finish his cereal... and this is while he is/has been medicated. Some of this I could understand if we were doing something new but we weren't ...so I have to ask myself, why does he fret over church?

Friday, December 26, 2008

we made it!!!


We made it through the holidays. And guess what? Joshua had to wake up Brandon on Christmas morning!! Brandon the one who was so excited for Christmas and could not rest was sleeping the morning Santa came!!!!!! LOL

I enjoyed being with the families and my father surprized me. He had seen a new clip about a young lad who had FAS (similar to my son Brandon) and had save the news clip for me to see. However, I knew of this child and everything but I was impressed that my father who seems not to be on board sometimes with what we deal with SAVED a news clip for me.

We got the Wii and now Joshua said he wanted a DS..... hmmmmm but he is quit happy with the Wii. I will now have to set up some strong time limits for the kids, between the TV and computer and now the Wii... time will be monitored. Right now Don is playing with them and the three boys are having fun.. It was a good gift for me even if I never get to play it.

Santa did very well at this household. So I can now relax and enjoy the rest of the holiday season.

Hope everyone had a great holiday.

Tuesday, December 23, 2008

christmas time

So as I am running around with my head cut off trying to get things done the kids are not being to helpful. More difficult than usual and Brandon is the ultimate in making little things so darn difficult I want to SCREAM. However, in staying calm during a moment with him I found out that Brandon is so excited for Santa he can't think. He doesn't get time relation so it is hard for him to wait. He said his head is exploding because he wants Santa to come, he can't take it anymore.

Pretty sad that he has to act out in the strangest of ways.... running around the house on all fours being a dog, a reindeer and cat... making strange sounds all the time because he can't figure out what is happening. I mean he is so excited it is hard to be calm. Daily tasks are so hard to do and think through, we are on constant reminder mode. He can't stay focused on anything. It is getting very exhausting, almost that Santa needs to come early.

Even meds to help with his ADHD not working.

Now we have to stay warm and dry during the next storm.

Wednesday, December 17, 2008

Disney 2008


Well I must admit at first I was a bit bummed with Disney. The first day things could not go slower and more frustrating. I or we were so exhausted we could not think straight. The kids did wonderful.

Josh was afraid to fly or travel or even meet Mickey. He was bawling his eyes out when we loaded him into the van to go to the airport. I thought for sure we may not make it there. Once he was at the airport and he saw the planes and airport we were good. After we landed, he wanted to do it again. It was the best day ever.

The first day there we were so exhausted it was hard to enjoy anything. It seem nothing was going our way. I will say we were cranky. Had a pretty good time at Hollywood Studios in the evening. Didn't do much but got to see the Muppet 3D which the boys really enjoyed.

The second day we had breakfast with Mickey. It was fun. The boys were both jumping out of their skins to meet Mickey and the gang. They did great though and really waited for their turn at the tables. I must admit the characters amazed me. They really work the one table and then if another child or someone interupts the character still go on with whom they are with and doesn't give that person acknowledgement. Must be the mom in me, but to ignore what is going on around them and focus on one table is amazing. Don't get me wrong they are not ignoring anyone they just stay so focused it is amazing. They do not stray from what they are doing which I would think would be hard if there are kids trying to interupt. Which is good if you have kids that can't stay in their seat.

The few days went good and we were very busy. A very Merry Christmas was not what I expected, but the shows were good. I guess we just always manage to stay in the thick of things with were all the people were. Very crowded.

The last night Brandon got to be part of the Hoop Dee Do show and it was very entertaining. Don got sick and spent the next day sharing himself all over the hotel. Too bad we didn't have a room, yuck. But we believe now he had food poison and so it took a day to re coup and luckily we went to his friends house for a day before we had to travel and he was able to relax a bit. The house itself was chaotic, kids,dogs, cats but he was able to sleep without having to travel.

I guess you could say we had a good time, but WOW is it different than what you expect. We thought we would have problems with Brandon, and it was Josh that gave us the harder time... good figure.

Friday, December 5, 2008

tooth fairy

Josh lost his front tooth !! It has been almost sideways for a week now and last night it fell out. Well the tooth fairy was lucky and got up at 3:00 am to use the facilities and realized she hadn't done her job. So in a sleepy haze she put three coins in a baggie and took the tooth from under Joshua's pillow and then fell into a deep sleep.

Then I was awoken by a little voice of Joshua's Brother Brandon... "Mommy, the tooth fairy forgot to leave a note?" Hmmm Mom "what kind of note." Brandon "you know that she left money, a note."

OK now a flashback, a few years ago when Brandon lost his front tooth we had the tooth fairy bring Josh a note with a quarter saying "don't be sad, your time will come" and then the TF left him a quarter. We did this because they had wanted to sleep in the same room to see the TF and we knew they would not sleep so we said no and then Joshua was quit upset he had not lost a tooth yet. Well he has lost two since and might I add without a note.

But for some reason this was weighing on Brandon's mind. I told him maybe the tooth fairy knew that the boys would share (ha) but I told him to NOT wake his brother and to NOT ask him. Dumb move, he woke him and asked about sharing and then threw himself into a fit all morning over everything. I explain to him when you wake someone up and then demand something from them more than likely they will say no. He could not put a grip on this, just upset. So Mom does the best thing she could think of... I put a quarter on his floor and had Brandon find it. Still upset because his brother got three quarters and he got one. I told him it is because he had not lost a tooth, his brother lost the tooth. I figure at this point I am not going to win anything and I give up and set up breakfast. Now we are angry over other things.

I think much has to do witht hte family vacation soon. They are both nervous and Joshua is very afraid of flying. I mean scared to death of it for some reason. I can only think someone said something to him that has him very afraid. We have been trying to keep it calm. Brandon just acts out in different ways that can be exhausting and then you realize it has to do with something else.

This time of year is hard on both my guys. This is when we flew them from Ukraine to America, took them from everything they knew and enter them into a world of new sounds, smells, voices, language, routine without truly understanding what this does to a baby. Even if you are doing for all the right reasons, they still feel abandonment. It is a very difficult time now, and what are we doing?? We are leaving their routine and life as they know it and going to Disney!! Yeah for fun but this is really not the best of times for them. They need to feel safety. You would think I would learn this by now and not schedule anything but this is the best of times for Don and I. We loved that we became a family and we want to embrace it and enjoy it. Also, on vacations we really get to spend so much time with the boys especially Dad/Don.